It's a Cushie Life: my journey to Cushing's Syndrome recovery

Nancy

Feb 13, '12 7:30 PM
for everyone

Link: http://www.caregiver.va.gov

Excellent tools for caregivers--even those who are their own caregiver. Very useful outside the VA health system as well.

Tags: caregiver, medicine log, questions to ask

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blicktx wrote on Feb 14

I like that site. There are some tools there I can use. I'd written the Myasthenia.org befor and didn't hear back. I wrote them again today and suggested they add a similar section on their site. Wonder if they will respond.

cushielife wrote on Apr 1

If they don't respond, send the email again and again and again....until they do!

blicktx wrote on Apr 1

It took over a week after a second request -- but I did get a response. Said they would consider it, and for a support group suggested I contact a chapter in NEW YORK!!!

cushielife wrote on Apr 3

New York. Yeah, it's famous for supporting Texans with MG...oh, and for picante sauce. (I threw in the sarcasm for free.)

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